As of today, the Epidermolysis Bullosa (EB) Awareness in Second Life raised over $107,000L for the Debra of America (EB research association). Let’s keep the momentum going and donate more!
Epidermolysis Bullosa, or EB, is a very rare genetic connective tissue disorder that affects 1 child out of every 20,000 births (that means about 200 children a year are born with EB). EB is actually a group of disorders that share a prominent manifestation of extremely fragile skin that blisters and tears from friction or trauma. Internal organs and bodily systems can also be seriously affected by EB. As of today, there is no cure or treatment. Daily wound care, pain management and protective bandaging are the only options available. Children affected with Epidermolysis Bullosa are known as butterfly angels because their skin is as fragile as the wings of a butterfly.
Todays post focuses on some of the lovely butterfly inspired designs by the talented SL creators. Please note most designers are donating a portion of their sales to Debra of America. Ms. Stargem Winkler, creator of Stars! Jewelry is contributing 100% of the proceeds of all three discounted Stars! sets including the Butterfly Garden and Blue Butterfly worn below. Ms. Laluna Xue, designer of Punky Chicks, created 6 exclusive butterfly dresses and 75% of the profits will be donated to the EB Awareness Event.
Each day this week there is an activity including raffles, a concert series, party and fireworks display. The Epidermolysis Bullosa (EB) Awareness in Second Life fundraising event is open until May 5, 2014. Please SUPPORT this compelling and urgent cause to help find a cure. Event Taxi…
Entice Birds & Butterflies & Stars! Jewelry Butterfly Garden (booth #15 & 26):
Punky Chicks Satin Dress #1 & Designs by Sebastian Babylon (booth #8 & #27):
Punky Chicks Satin Dress #2 & Designs by Sebastian Sequoia (booth #8 & #27):
Punky Chicks Satin Dress #3 & Stars! Jewelry Blue Butterfly (booth #8 & #26):
Punky Chicks Tube Dress #1, Designs by Sebastian Crystal Butterfly Flight Sunrise & Glow Designs Roses Crown Pink (booth #8, #27 & #33):
Punky Chicks Tube Dress #2 & Designs by Sebastian Devra’s Pearl (booth #8 & #27):
Punky Chicks Tube Dress #3 & Designs by Sebastian Cherry Blossom (booth #8 & #27):
EB Event Map:
EB Event Schedule: