Imagine not being able to hug your child. Imagine not being able to cuddle with your Teddy bear. Imagine your skin being covered in blisters and scars, and in constant pain. Imagine there’s no cure. Now, Imagine YOU can help!
On Monday, April 28, Epidermolysis Bullosa (EB) Awareness in Second Life fundraising event launched, benefiting Debra of America (EB research association).
Epidermolysis Bullosa, or EB, is a very rare genetic connective tissue disorder that affects 1 child out of every 20,000 births (that means about 200 children a year are born with EB). EB is actually a group of disorders that share a prominent manifestation of extremely fragile skin that blisters and tears from friction or trauma. Internal organs and bodily systems can also be seriously affected by EB. As of today, there is no cure or treatment. Daily wound care, pain management and protective bandaging are the only options available.
Research is the key to unlocking a cure for EB. Over 40 Second Life designers have taken up the cause and are donating portions of their sales to the Debra of America fund. Children affected with Epidermolysis Bullosa are known as butterfly angels because their skin is as fragile as the wings of a butterfly. The butterfly design is prominent in our SL designers’ creations. The event sim was donated by Ray Burdenya of Burdenya Islands, landscaping by Sera Bellic of LICK Sim & Set Design, Trunkztomorrow2011 of Blue Buddah Club Supplies provided donation boxes, HauteCoutureDesign created the moving EB sculpture, and luv2 Brandi of Definitive Rock Concerts and Pirate Metal Production presented the tribute concert. Each day this event week there is a special raffle with furniture and photography prizes, a concert series, author chat, party and fireworks display. The Epidermolysis Bullosa (EB) Awareness in Second Life fundraising event is open until May 5, 2014. Please SUPPORT this compelling and urgent cause to help find a cure. Event Taxi…
Kaerri Butterfly Home Decor (booth #16):
ShadowMoon Summer Breeze, RueMorgue Butterfly Jacket & KaTink Chasing Butterflies Poses (booth #35, #38 & #19):
ShadowMoon, KaTink Poses: (Dulce Secrets Watercolor Splash SLINK Nails, below booth #34):
Map of event sim:
EB Awareness Event Schedule: